In the News

Lung Disease Medication – Go! Edmonton

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Drug not covered by province could prolong life of patient – Global News, New Brunswick

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CKPC AM


Clinical trial for new IPF treatment gives Canadian patient something to be excited about…

Click here to learn about IPF patient Gordon Burwash and his experience with a new IPF treatment expected to be available in Canada in 2015.


National Post Series

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Alberta lags behind in access to new drugs

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New drug plan approves only scientifically proven drugs

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Evidence needed to approve drug for funding: Minister

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Advocate excited about new study on drug that treats IPF

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New hope for IPF patients

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CKPC-AM Radio

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CKNZ-AM 920

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Drug proven to slow progression of rare, fatal lung disease may also reduce the risk of death

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New England Journal of Medicine publishes results of Phase 3 ASCEND Study of Pirfenidone in Idiopathic Pulmonary Fibrosis and new data is presented at American Thoracic Society (ATS)

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King Weekly Sentinel – Resident, CPFF lobby to make life-extending drug accessible

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Wall Street Journal – The FDA’s Black Lung

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Rogers Daytime York-Region – International Rare Disease Day

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Dying for a chance to breathe

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MPP Walker Raises Issue of IPF at Queen’s Park

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New drug places a $40,000 price tag on hope

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Advocating for life-saving drug a long, arduous process

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Patients With Rare Lung Disease Plead For Drug Funding

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InterMune Reports Phase 3 ASCEND Trial Results of Pirfenidone in Idiopathic Pulmonary Fibrosis (IPF)

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Rare Lung Disease Patient “Watch List” Tracks Impact of Restricted Access To Only Treatment Option

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Canadian Patients With Rare Lung Disease Still Dying Without Access To Only Treatment

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Reader Letters – Comparing Health Care Systems

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Ontarians suffering due to baffling drug funding decision

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IPF patient desperate after denied funding for drug – January 8, 2014

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Inside Brant – December 4th, 2013


CTV Atlantic – News at Six

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CTV Kitchener – News at Six


Fighting for a longer life

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IPF sufferers seeking provincial support

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“You shouldn’t have to die because you are poor”

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Canadian Pulmonary Fibrosis Foundation leads Alberta’s first Idiopathic Pulmonary Fibrosis Awareness Day

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Port Hope man waiting for provincial funding for fatal illness treatment

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Campbellcroft couple race the clock against IPF

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Access to medication

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Trying to buy some time

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Drug provides new hope for rare lung disease, but cost still not covered in Canada

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CTV National News – November 4, 2013


Double-lung transplant gets Oakville resident riding again

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New catastrophic drug plan aims to relieve costs

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Metro Toronto - Lending a lung for IPF Awareness


Torontonians lend their lungs to raise awareness for rare, fatal disease

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Canadian Pulmonary Fibrosis Foundation joins international network for IPF World Week

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CTV Atlantic


Lung disease sufferer gets ‘point across’

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NB man suffering from a fatal lung illness denied treatment


N.B. senior fights for drug coverage

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Senior taking his struggle for drug coverage to capital

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Funding delay for sole treatment leaves rare and fatal lung disease to progress in Ontario patients

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CBC News – Calgary Eye Opener – September 2, 2013

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CBC News Calgary – September 2, 2013


Woman wants medication covered by drug plan

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Bawlf woman denied life-saving drug for rare lung disease

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Waiting on transplant

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LUNG TRANSPLANT: Cornwall mom enlists the help of her daughter ahead of surgery

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Resident fights for treatment access for her mother

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Cindy Charpentier lobbies for lung disease drug

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Vital drug not yet covered by Ontario Drug Plan

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Studio 12 News: A Plea For Help from Bowmanville Woman


Patients fighting deadly, rare lung disease issue urgent plea for access to first and only treatment option

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Woman with rare lung disease fights for drug

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Cost of lung-disease treatment killing hope: national advocate

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IPF patient Debbie Mullins feels like a price tag has been put on her life. The Western Star reporter Cory Hurley tells her story in the article, “What’s the price of life?”

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NICE Recommends InterMune’s Esbriet for IPF Patients

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Price of Life is €32k and HSE Won’t Pay

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Lung patients told they can’t have life-saving drug

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Reilly urged to help Lung Fibrosis drug available

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Green Briar man shares lung transplant story

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Esbriet® (pirfenidone) Receives Positive Final Appraisal Determination from NICE for Idiopathic Pulmonary Fibrosis (IPF)

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Rare lung disease community empowered through connectivity

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Important advancement in the treatment of IPF approved in Canada


Medication could help slow progression of IPF

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Fundraising support needed to aid woman’s health journey

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The only treatment indicated for mild to moderate IPF in adults is now available in Canada.

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Health Canada Approves Esbriet® – On October 2, 2012, Health Canada approved Esbriet® as the first treatment for IPF.

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Health Specialist Leah Sarich talks about a new drug giving people with IPF more time.

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Read an article from the CPFF president published in the National Post Rare Disease Supplement on Friday October 19, 2012

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Global Television reporter Beatrice Politi interviews Dr. Shane Shapera, Robert Davidson and Bill Green.

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Maria Hayes, health reporter from CHCH TV, interviews Dr. Kolb, from the Firestone Clinic in Hamilton, and a man living with IPF.

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On September 17, 2012 Pauline Chan from CTV reported on IPF from Dr. Shane Shapera’s clinic in Toronto.

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Roy Green interviewed Robert Davidson alongside Hélène and Manon Campbell on June 2, 2012

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Rob Alexander-Carew’s bike will never stop rolling! Read his story at InsideHalton.com

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Read Robert Davidson’s story “every breath you take” at YorkRegion.com

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