Patient Education & Support Group Toolkit

Idiopathic pulmonary fibrosis (IPF) support and education groups play an important role in helping individuals living with IPF, their families and friends better understand the disease and their options to deal with its mental and physical impact. This toolkit has been developed by the Canadian Pulmonary Fibrosis Foundation (CPFF) with support from a medical steering committee and a grant through InterMune Canada, Inc., to support individuals, strengthen the IPF community, and build new groups throughout Canada. This toolkit will assist you in planning, sharing and executing an IPF patient support group in your community, either in person or online.

This toolkit can be used in many different ways and can be tailored to your needs. This leader guide outlines a few suggestions about how you can use these resources. You may also use them in other ways as you see fit.

Read how one group of patients and caregivers got together and formed the Calgary PF Support Group

To find out how you can become connected with other support groups in your area, or to create a support group of your own, please contact

Title Page
Table of Contents

Group Leader Module
Module 1: IPF 101
Module 2: IPF Diagnostic Tools and Treatments
Module 3: How to Manage IPF
Module 4: Living with IPF
Module 5: Communication and Advocacy
Module 6: Preparing for a Future with IPF
Module Template
Participant Recruitment Poster
Public Service Announcement (PSA) Script
Participant Registration Form
Toolkit Checklist
Health Care Provider Letter
Binder Spine