Information on IPF
Pharmaceutical Treatment Information for PF
Patient Groups and Organizations
- EURODIS (European Organisation for Rare Diseases)
- Mesothelioma Guide (United States)
- RareConnect.org (Partnership of EURODIS and NORD)
- Papworth Hospital Interstitial Lung Disease service (United Kingdom)
- Longfibrose VZW (Belgium)
- Lungenfibrose eV (Germany)
- Ama Fuoridalbuio (Italy)
- Longfibrose NL (Netherlands)
People with lung disease and other pre-existing conditions often find challenges for travelling especially flying and travelling outside their country. From time to time, we will provide links or information that we hope you will find useful.
From the December 2014 issue of the Hope Newsletter, a newsletter for lung transplant patients, Travel Insurance for Pre-Existing Conditions. Thank you to Ann McGuire for kindly sharing this information with our PF community.