Pulmonary Fibrosis Support Group Meeting, Vancouver, May 13, 2014
Support group for Pulmonary Fibrosis and Interstitial Lung Disease patients coordinated by the Pulmonary Fibrosis Clinic at St. Paul’s Hospital in Vancouver.
St. Paul’s Cafeteria – 4th Floor, Dining Room 1-2
May 13, 2014
5th Annual Spring Gala, Saturday, May 3rd, 2014
The fifth annual Spring Gala will be held on Saturday, May 3rd, 2014 at Le Parc Banquet Centre on Leslie Street in Markham (Leslie Street just south of Hwy 7 and west of Hwy 404). Doors open at 6p.m.
Once again, tickets for the event are $95.00 per person and include a beautiful 4-course meal, refreshments, dancing to a very entertaining DJ from Urban Entertainment and door prizes. Additional fundraising activities include raffle tickets and an exciting silent auction table.
Tickets can be purchased by clicking on the link above, or by emailing Robert Davidson at firstname.lastname@example.org. A tax receipt for $30 will be issued for each ticket purchased, please be sure to provide your full name and address.
Early bird draw – Purchase your ticket before April 1st, 2014, and your name will be entered into our draw to win a Samsung 7″ tablet.
5th Annual Golf Open, Thursday, July 24th, 2014
This sell out event is always a lot of fun. Once again, it will be held at Angus Glen on Thursday, July 24th. Be among the first golfers to play the new and improved South course, home of the Bell Canada 2002 Canadian Open.
Registration starts at 11:00a.m. with lunch at 11:30a.m. Shotgun start with carts provided will be at about 1:00p.m. Pick your choice of either play your own ball or put together a foursome scramble. An excellent dinner follows at about 7:00p.m.
There are 2 hole-in-one chances; 1 for a car, and 2 a cash hole valued at $20,000, split with the charity, you receive $10,000 plus a tax receipt for $10,000!! There are many other exciting course prize opportunities, as well as raffles and a small silent auction.
Tickets are only $250 per person and in addition to the great on course activities, includes lunch, a fabulous dinner, the use of the locker rooms, driving range and a tax receipt for $35.00.
We also welcome and appreciate sponsors. If you wish to help fund research into this devastating disease, please complete the sponsor part of the registration and Robert will contact you, or contact Robert directly at Robert@cpff.ca.
Tickets will go quickly, so book early to secure your spot!!
Dinner only option is available for $75.00, which includes a tax receipt for $20.00
IPF Patient Education Session
Join the CPFF and leading IPF specialists for an informal session for patients with IPF, their families and friends, to learn more and ask questions about pulmonary fibrosis.
November, 30, 2013
Miller Amphitheatre, 2nd Floor Juravinski Tower
St. Joseph’s Healthcare Hamilton
50 Charlton Ave. East, Hamilton ON
Rob’s Ride – Indoor Cycling for Pulmonary Fibrosis
Please join us on October 25th for the second annual Rob’s Ride, an indoor cycling event in support of Pulmonary Fibrosis.
Friday, October 25, 2013
3:00pm – 9:00pm
River Oaks Community Centre
2400 Sixth Line, Oakville ON
2013 Scotiabank Charity Challenge
Held on Sunday October 20, 2013, the CPFF is now registered for the Toronto Waterfront Marathon. Run or walk in honour of a loved one or to simply give something back to your community. No matter which distance you participate in, your fundraising makes a difference!
For more information on registration and discount codes: Please click here
IPF Walk for Breath
September was Idiopathic Pulmonary Fibrosis (IPF) Awareness Month and September 21-29 was IPF World Week, celebrated in eight countries around the world, including Canada. The Canadian Pulmonary Fibrosis Foundation (CPFF) invited Torontonians to show their support by lending their lungs at the IPF Walk for Breath.
IPF is an interstitial lung disease with no known cause. Studies suggest that up to 30,000 Canadians are believed to be affected by all forms of pulmonary fibrosis, with an estimated 3,000 to 5,000 suffering from mild to moderate forms of IPF. The disease affects all ages and races but is usually diagnosed between the ages of 40 and 80 years, with a life expectancy of just two to five years. In patients with IPF, the lung tissue becomes scarred and over time, as the scarring becomes thicker and more widespread, the lungs lose their ability to transfer oxygen into the bloodstream. As a result, patients become short of breath and the brain and vital organs are deprived of the oxygen necessary for survival. IPF has a higher mortality rate than many other malignancies, including pancreatic, lung and liver cancers.
In order to continue to raise awareness of IPF and the need for access to treatment, as well as show public support for those living with this rare, progressive and fatal lung disease, the CPFF hosted the IPF Walk for Breath. Torontonians were invited to do something that Canadians with IPF can’t – walk to Queen’s Park and blow bubbles.
IPF Walk for Breath
Thursday, September 26, 2013
Starting at 12 noon
Downtown Toronto (Elm Street & University Avenue, east side. Look for the red t-shirts!)
Bubble blowing at Queen’s Park (South Main Lawn)
September is Idiopathic Pulmonary Fibrosis (IPF) Awareness Month
The Canadian Pulmonary Fibrosis Foundation (CPFF) hosted a news conference today at Queen’s Park to discuss the current challenges faced by patients diagnosed with this rare, progressive and fatal lung disease – which has a similar short life expectancy to that of many forms of cancer.
IPF patients and their caregivers appealed to the Ontario Ministry of Health to provide publicly-funded access to Esbriet (pirfenidone), the first and only treatment approved in Canada for people living with mild to moderate forms of the disease. Patients, their family members and caregivers gathered at Queen’s Park in an effort to communicate their urgent messages to government.
Robert Davidson, Dr. Matthew Binnie (Respirologist, Toronto General Hospital), and Laurie Fowler (advocating on behalf of her mother Virginia Koury) discussed the following:
• IPF and the challenges faced by those living with the disease;
• The current treatment landscape in Canada; and
• The importance of immediate public funding/access to Esbriet in Ontario
Halifax Bluenose Marathon Scotiabank Charity Challenge
Once again we have entered the Charity into the Halifax Bluenose Scotiabank Charity Challenge. The run/walk takes place in Halifax on Sunday, May 19, 2013.
Please support one of our runners, or consider enterting the event. Find out how to be a part of the Charity Challenge by clicking the below button.
Scotiabank Vancouver Half Marathon and 5K
Held on Sunday June 23, 2013, this is the first year the Foundation will be entering this event. It promises to also be fun, as it’s Vancouver after all! Again, keep your eye on our website for upcoming entry information.