IPF Patient Education Session
Join the CPFF and leading IPF specialists for an informal session for patients with IPF, their families and friends, to learn more and ask questions about pulmonary fibrosis.
November, 30, 2013
Miller Amphitheatre, 2nd Floor Juravinski Tower
St. Joseph’s Healthcare Hamilton
50 Charlton Ave. East, Hamilton ON
Rob’s Ride – Indoor Cycling for Pulmonary Fibrosis
Please join us on October 25th for the second annual Rob’s Ride, an indoor cycling event in support of Pulmonary Fibrosis.
Friday, October 25, 2013
3:00pm – 9:00pm
River Oaks Community Centre
2400 Sixth Line, Oakville ON
2013 Scotiabank Charity Challenge
Held on Sunday October 20, 2013, the CPFF is now registered for the Toronto Waterfront Marathon. Run or walk in honour of a loved one or to simply give something back to your community. No matter which distance you participate in, your fundraising makes a difference!
For more information on registration and discount codes: Please click here
IPF Walk for Breath
September was Idiopathic Pulmonary Fibrosis (IPF) Awareness Month and September 21-29 was IPF World Week, celebrated in eight countries around the world, including Canada. The Canadian Pulmonary Fibrosis Foundation (CPFF) invited Torontonians to show their support by lending their lungs at the IPF Walk for Breath.
IPF is an interstitial lung disease with no known cause. Studies suggest that up to 30,000 Canadians are believed to be affected by all forms of pulmonary fibrosis, with an estimated 3,000 to 5,000 suffering from mild to moderate forms of IPF. The disease affects all ages and races but is usually diagnosed between the ages of 40 and 80 years, with a life expectancy of just two to five years. In patients with IPF, the lung tissue becomes scarred and over time, as the scarring becomes thicker and more widespread, the lungs lose their ability to transfer oxygen into the bloodstream. As a result, patients become short of breath and the brain and vital organs are deprived of the oxygen necessary for survival. IPF has a higher mortality rate than many other malignancies, including pancreatic, lung and liver cancers.
In order to continue to raise awareness of IPF and the need for access to treatment, as well as show public support for those living with this rare, progressive and fatal lung disease, the CPFF hosted the IPF Walk for Breath. Torontonians were invited to do something that Canadians with IPF can’t – walk to Queen’s Park and blow bubbles.
IPF Walk for Breath
Thursday, September 26, 2013
Starting at 12 noon
Downtown Toronto (Elm Street & University Avenue, east side. Look for the red t-shirts!)
Bubble blowing at Queen’s Park (South Main Lawn)
September is Idiopathic Pulmonary Fibrosis (IPF) Awareness Month
The Canadian Pulmonary Fibrosis Foundation (CPFF) hosted a news conference today at Queen’s Park to discuss the current challenges faced by patients diagnosed with this rare, progressive and fatal lung disease – which has a similar short life expectancy to that of many forms of cancer.
IPF patients and their caregivers appealed to the Ontario Ministry of Health to provide publicly-funded access to Esbriet (pirfenidone), the first and only treatment approved in Canada for people living with mild to moderate forms of the disease. Patients, their family members and caregivers gathered at Queen’s Park in an effort to communicate their urgent messages to government.
Robert Davidson, Dr. Matthew Binnie (Respirologist, Toronto General Hospital), and Laurie Fowler (advocating on behalf of her mother Virginia Koury) discussed the following:
• IPF and the challenges faced by those living with the disease;
• The current treatment landscape in Canada; and
• The importance of immediate public funding/access to Esbriet in Ontario
4th Annual CPFF Golf Open
Always a popular event, this year’s Golf Open will be held on Wednesday July 31, 2013. It will be held again at the Angus Glen Golf Course in Markham, but on the South Course, home of the Bell Canada 2002 Canadian Open.
Shotgun start will be at about 1:00PM and is again your choice of play your own ball, or set up your foursome for a scramble. Tickets are still only $250 for playing this top class course and includes golf with a cart, lunch, dinner (wine will be served), use of the locker rooms, driving range and a tax receipt of $35.00. Numbers are restricted to 144, so book early!
Halifax Bluenose Marathon Scotiabank Charity Challenge
Once again we have entered the Charity into the Halifax Bluenose Scotiabank Charity Challenge. The run/walk takes place in Halifax on Sunday, May 19, 2013.
Please support one of our runners, or consider enterting the event. Find out how to be a part of the Charity Challenge by clicking the below button.
Scotiabank Vancouver Half Marathon and 5K
Held on Sunday June 23, 2013, this is the first year the Foundation will be entering this event. It promises to also be fun, as it’s Vancouver after all! Again, keep your eye on our website for upcoming entry information.
4th Annual Spring Gala
The fourth annual Spring Gala will be held on Saturday April 27, 2013 starting at 6:00 PM at Le Parc Banquet Centre on Leslie Street in Markham (Leslie Street just south of Hwy 7 and West of Hwy 404).
Tickets for the event are $95.00 per person and include dinner, refreshments and dancing. Door prizes will also be awarded to the lucky ticket holders. Ensure to bring your wallet for the fun auctions and raffles!
Tickets can be purchased online by clicking on the link or by emailing Robert Davidson at Robert.firstname.lastname@example.org. Payment can be made by PayPal, Visa, Mastercard, cheque or cash. A tax receipt for $30 will be issued for each ticket purchased so make sure we have your full name and address. Otherwise we cannot issue the receipt.
Scotiabank Toronto Waterfront Marathon
This event will be held on October 20, 2013 and the Foundation will once again be there. Keep your eye on our website for upcoming entry information.